EDSkids Forum
Register FAQ Members List Social Groups Calendar Search Today's Posts Mark Forums Read

Go Back   EDSkids Forum > EDS & Other Health Issues > ~Hypermobility EDS~
Reload this Page treatment

~Hypermobility EDS~ For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

Reply
Page 1 of 2 1 2 >
 
Thread Tools
Old 06-09-2008   #1
Chiara
Devoted Member
 
Join Date: Jun 2008
Location: italy
Posts: 82
Send a message via MSN to Chiara
treatment
What is the treatment you follow for pain?
I'm using OH-triptofane but it is not working so much...
Is anybody of you taking vitamin C?
__________________
Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
Chiara is offline   Reply With Quote Share on facebook
Old 06-09-2008   #2
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
I take Percocet (roxicet + tylenol) Ultram (tramadol) Lyrica (pregabalin) and Cymbalta for pain...

i do relaxation therapy and supposed to be in aquatic therapy. I also have lidocaine patches.
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 06-09-2008   #3
beth
Guest
 
Posts: n/a
I take Tramacet and that's it, but judging by reinedelaseine's post though I could be taking more (unlike what the bloody lieing docs tell me )

Which do you find works best out of Lyrica/Perc/Cymbalta/Tramadol etc?

maybe it's time for some med adjustment.....
  Reply With Quote
Old 06-10-2008   #4
stacekins
Moderator
 
stacekins's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 279
Send a message via AIM to stacekins Send a message via Yahoo to stacekins
I'm not taking anything at the moment cause my meds quit working and my doctors didn't want to change them, so I took myself off of them.
__________________
Staci Jo
*21*

 When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

I'm a moderator here and if you wanna chat or have any questions I'm here.
stacekins is offline   Reply With Quote
Old 06-10-2008   #5
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
The Perc works best overall but I need the Lyrica due to neuropathy.
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 06-25-2008   #6
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 903
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
I am on a ton of pain medication.
I forget what all I am on, but I will look this evening and send what I know.

Otherwise, for pain & such, I just try to relax as much as possible and take it easy.
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 01-12-2010   #7
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 903
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Mike, I am not warning again, you have links in your profile that are not prohibited here. Please remove them.
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 01-29-2010   #8
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
It's good info though...but I see the links have still not been removed.
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 01-30-2010   #9
Timeless
Tech Admin
 
Timeless's Avatar
 
Join Date: Jan 2008
Country: Timeless's Flag is: England
Location: somewhere in the UK
Posts: 229
Send a message via AIM to Timeless Send a message via MSN to Timeless Send a message via Skype™ to Timeless
they have now, removed them manually.
__________________
Timeless is offline   Reply With Quote
Old 06-14-2010   #10
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 903
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Steph- We are not allowing any links in profiles because if we let him keep his links we have to let everyone have links.

Timeless- Thanks for removing them.
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Reply
Page 1 of 2 1 2 >

Tags
treatment

« Previous Thread | Next Thread »

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -5. The time now is 04:18 AM.

Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Forum SEO by Zoints
© EDS Kids 2008
EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
vBulletin Skin by Fife Web Solutions for Free vBulletin Templates

Contact Us - EDSkids Home - Archive - Top