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Reload this Page The support you guys give.

~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 12-21-2009   #1
SophieeBabessxo
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The support you guys give.
I just want to say that whenever I come on here, I always read such great support everyone has for each other and it makes me smile so much .
I really wanted to say thank you for all the support you guys give to me and everyone else, this illness would be very hard to deal with if we didn't have such amazing supportive people around to keep us grounded. You people on here seem to give more support than some of the people I know sometimes. Words don't even begin to explain how thankful I am
You guys are also some of the most interesting people I have ever met. Your all full of storys and experience and it is really nice to see it all.
So thank you for everything you give to people on the this forum
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Old 01-05-2010   #2
Katherine
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aw that's lovely! ^^
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Old 01-06-2010   #3
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thanks
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Old 01-12-2010   #4
xxBrittany
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Awh. That's what we are here for Sophie. We are each others support systems. If I didn't have all of you to talk to on here, I'd probably lose my mind and be more depressed then I get at times. It's nice to know other people that go through the same thing as you, so you don't feel so alone in the world. I'm so glad that you feel as if we all helped you! That means a great deal to me because that's the first point EDSkids wanted to help our members with, and that means we have met our goal!
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Old 01-13-2010   #5
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As i'm highly emotional right now, Brittany, your comment just made me cry from happiness x
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Old 06-19-2010   #6
xxBrittany
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Aawhhhhhhhh! Now you are going to make ME cry!

I'm glad it's happy tears though and not sad or pain tears!
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Old 06-20-2010   #7
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Which makes a change! I was completely shocked when my boyfriend came round and I sudden got pains in my back so I couldn't move, he helped me sit up and arranged cushions for support!! I was sooo happy
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Old 06-20-2010   #8
xxBrittany
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Sounds like you have an awfully nice boyfriend Sophie!

It's good that he supports you & is there for you because we need all the support and emotional stability we can get with what we go through!

You should invite him to come to the boards!
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"some of us are just trying to get through the day without falling apart."


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Old 06-24-2010   #9
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He's looked around on it a few times, I might get him to join
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Old 06-30-2010   #10
xxBrittany
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You should!
I've been working to get my boyfriend to join too. But he works for our government and is ALWAYS so busy!
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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