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Reload this Page The Spoon Theory from ButYouDontLookSick.com

~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-11-2008   #1
SunsetParadise19
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The Spoon Theory from ButYouDontLookSick.com
http://www.butyoudontlooksick.com/na...poonTheory.pdf
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Gwendolyn
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EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 01-12-2008   #2
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 01-12-2008   #3
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What can I say... That really sums it all up in a nutshell dosn't it? The spoon theory does seem to fit with what I understand of debilitating illnesses, but it really hammers the message home about how much everything can affect everyday life. I highly recomend anyone who is a member but (like me) does not suffer from conditions like EDS, CFS or Fibromyalgia reads that
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Old 01-12-2008   #4
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as l said to Ai on IRC what 00:35AM on the date this was posted :p its a very interesting read, it makes you think outside the box so to speak and actually have somewhat of an understanding of what one goes through.
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Old 01-12-2008   #5
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Glad you two liked the Spoon Theory. I shared it with my counselor last week and she loved it!
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 01-12-2008   #6
Johnna
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It really helped my friend Amanda to understand my illnesses... I got the spoons out and everything! XP

-Johnna
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Old 01-14-2008   #7
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My psychologist thought it was brilliant My last counselor criticized it and seemed slightly offended "But healthy people don't have unlimited spoons!"
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Old 01-15-2008   #8
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While it is true we don't have unlimited spoons, we do tend to have a drawer full with several in reserve - put it like this I Have done some stupid shifts at work (my longest ever being 72 or so hours... true I did sleep during it but that is beside the point :P sleeping in the front seat of a van isn't good sleep.) My longest time without sleep due to work was about 48 hours It's quite an interesting story which I promise to tell sometime but this isn't the right thread for it ^_^ But yeah (I swear when I'm tired I get sidetracked too easily) while we may not have unlimited spoons we do have an awful lot more - I just wish I could share some of mine out...
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Old 01-15-2008   #9
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Thanks for posting that Gwen.
I think that is going to help a lot of people who are trying to learn about EDS, etc.


Eh, but where are MY spoons!?
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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