~Venting / Having a bad day?~Do you need to vent or are you just having a bad day? If so, this is the place to post!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I've been waiting a few months to see the rheumy for the first time.....I show up today a bit before my appointment time to find out that my appointment was YESTERDAY! Gah! Now I have to wait until April for my first appointment!!! I hate brain fog!
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
Yikes. That really bites; I sort of know how you feel - I pulled the same sort of thing today, except with an Academic Decathalon competition (realized it was today... About five hours after it ended).
When you make appointments, or events..
What I do is I write what time it is, where it is, and whatever and stick it in my room.
BECAUSE, if you think about it, you usually have to go back in your room for something when leaving your house. So put the sticky note like beside your bedroom door.
Hope this advice might come to good use!
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.