~Hypermobility EDS~For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I'm not entirely certain if this is the right forum (very sorry if it isn't...) but here goes...
Am I the only one left envying all the cute shoes the rest of the world gets to wear?
I practically salivate at the sight of a cute pair of high heels, but they're completely out of the question... If I try them on, I can barely walk - my ankles are just too wobbly and unstable. I've thought about wearing them with my ankle braces, but the things are too bulky to fit into many pairs, and they ruin the effect anyhow. My EDS afflicted grandmother managed to learn to walk in them, but her feet were completely ruined as a result.
Strappy sandals too are off limits - they've got an annoying tendancy to wear through my skin. Where I live, they're practically a uniform for anything dressier than flip-flop attire. And it's not so much that I want to go along with every trend, but they're soooo cute.
I'm sure some of this is the forbidden fruit phenominon, but has anyone else had issues with this? How do you get over the urge to wear shoes that'll kill your feet? I'm just about at the point of finding someone to custom-make a pair of boots for me - spike heels with boning or something to brace my ankles.
Me! I can't walk in heels very well! Especially the skinny heels...if they're wider I'm ok but not the greatest lol. I hate it but guess I just have to deal with it.
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
I could wear wider heels in high school but now I can't wear ANY and there are so few shoes that fit my AFOs...
I can't wear clogs or flip flops either. i wear orthotics and AFOs all the time. It sucks!
I told Mom that I finally need to let it all go...so I only kept the heels from graduation and gave her my clogs. So that leaves me with sneakers, Crocs and Mary Janes.
But...because i wear kids shoes...i did find flip flops with a heel strap that i can wrap around my brace...so i'm getting some of those.
I don't feel pretty anymore.
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
Ah, wow, this is a tough one to answer.
I can wear heals every now and then, when my ankles are acting, Ok.
But sometimes, I can't and it gets fusturating cause not only do I have weak ankles and weak (practically see through) skin bu I also have big feet. Size 11 in Womens. Eeek! I know. But anyways, I do have this problem and I am along with you Steph.
It is tough to not follow the trends especially when the things being worn are uber cute but very uncomfortable for people like ourselves.
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
who else finds shoes wear their skin out???? Since i got my braces this is better but i have scars on my heels from bleeding and straps go right through and rub off my skin.
Classical EDS...oh...
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
I have horrible shoe envy. I am a total shoe addict, or at least I used to be. I had one heck of an adorable shoe collection of all the pretty stylish heels.
I now am down to a couple pairs of heels, but lately I've been really wanting to wear them again. For me its not so much my ankles that are a huge problem, its my knees that cause me the most troubles.
I just bought the cutest pair of black stiletto heels that are kinda mary jane style, and I'm totally in love, but I can't wear them often, and I actually haven't been able to wear them yet cause its been so darn icy out and I have a hard enough time walking with regular shoes on, so I figure I shouldn't push it.
I have to go to a wedding in a couple weeks and I'm hoping that my back will be ok enough for me to wear them, but I'm figuring if its not, I'm still gonna wear them anyways, my dress just won't be the same without them.
I love heels and my legs look so much prettier and longer when I wear them. It makes me feel very pretty and sexy to wear them, and I miss the days of feeling like a desirable gal.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.
who else finds shoes wear their skin out???? Since i got my braces this is better but i have scars on my heels from bleeding and straps go right through and rub off my skin.
That happens to me all the time, mostly with sandals or clogs and such; I get it more on the top of my feet, though.
It's a lot less of an issue if I wear socks with them, but then what's the point of sandals if I have to wear socks?
I got the CUTEST sandals today...it's taken a long time but they are perfect. White and silver...they have rubber bottoms, no heel, velcro strap and are dressy!!!! I had gone to the Children's Place for dress and pants and found them...and the top band doesn't even touch my foot lol I shall post pics
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
LOL I think its so funny that you can fit into clothes at children's place...I know that your tiny, but I guess since I've never seen you in person I have a hard time imagining how small you actually are.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.