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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 08-20-2008   #1
Chiara
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question a question
The day before yesterday I have been in ER from 12.30 to 20.15.
I went there because I was in the shower when I had tachicardya and then started to feel like if something was pressing my thorax.
when I lay down it stops and when I get up it starts again.
has anybody of you experimented this before?
what did doctors said about that?
Chiara
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Old 08-22-2008   #2
ReineDeLaSeine14
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Yep...I have Dysautonomia (Postural Orthostatic Tachycardia Syndrome)...it's very common with EDS.
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Old 09-01-2008   #3
xxBrittany
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Ditto to what Steph, said!
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Old 09-14-2008   #4
Johnna
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I had almost the exact same experience.
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Old 09-16-2008   #5
Chiara
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They told me it was nothing...that I was simply nervous...
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EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 09-16-2008   #6
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I've gotten that too...i think we all have
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Old 09-24-2008   #7
Chiara
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but that happens just sometimes...
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Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 10-20-2008   #8
xxBrittany
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Same for all of us on the most part. Or for me at least. It DOES only happen sometimes. It's a tricky thing to deal with. blargh..
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Old 10-29-2008   #9
Chiara
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that happened no more....
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Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 11-06-2008   #10
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So how are you feeling Chiara?
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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