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Reload this Page Pain Meds? Which are the best?

~Hypermobility EDS~ For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 08-25-2009   #21
SophieeBabessxo
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I went to the doctors today and my mum asked about any pain med.
I'm not allowed anything with codine in it because 2 family members have had a bad reaction, so I'm stuck with nothing :/
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Old 08-27-2009   #22
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oh no that's not good, can they not give you something else?
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Old 08-27-2009   #23
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Not at the moment cause I'm too young :/
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Old 11-09-2009   #24
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But if you are having trouble why can't they give you other medication? That's not right. I would suggest getting a second opinion.
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Old 01-29-2010   #25
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Me too. Kids should not be in pain.
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Old 01-30-2010   #26
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All i can have is paracitamol and ibeprofen, which sorta works, sometimes.
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Old 05-21-2010   #27
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Just recently the doctors put me on a small dose of methadone for the pain and it is AMAZING. It brings my pain down from an 8 to a 5 without making me high! I haven't been at a 5 without being high since I was 11 years old!

They also gave me morphine sulfate for breakthrough pain. It helps but it's not all that awesome.
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Old 06-14-2010   #28
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Johnna-
Thanks for letting us know about that...

I am going to talk to my doctor about that as well!

Thanks a bunch, darling!


Hope you are feeling better!


Sophie-
Did they ever put you on a new medicine?
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Old 06-17-2010   #29
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For pain they didn't, they put me on something foe my sickness, but it made me feel more sick :/
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Old 06-18-2010   #30
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ugh. that stinks!

i feel like crap right now. my stupid knees keep blowing out, and my back is acting terrible.
i went to my geneticist today and he told me that he believes i have a pinched nerve, and if it's the one he is truly concerned about due to me not being able to feel much on my right leg, i might have to have surgery to correct it. I hope it's fixable WITHOUT surgery.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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