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Reload this Page Pain Meds? Which are the best?

~Hypermobility EDS~ For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-07-2009   #11
xxBrittany
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Shew. Girl. I feel your pain.


I hope you get something that works for you soon doll!

If you ever need anything, I am ALWAYS here for you to chat or anything you need!
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Old 01-14-2009   #12
Chiara
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I take
L-5-hydroxitriptofane
the name of the med itself is "Tript-OH" but i guess that changes from country to country.
that is quite mild, but they don't want me to take anything too strong...
Anyway it helps quite a lot.
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Old 03-02-2009   #13
xxBrittany
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What did they prescribe that to you for Chiara? Like what kind of pain?
I'm going to look into it here in the States.
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Old 07-26-2009   #14
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I got diagnoised in June, so they haven't done anything for me.
A joint and muscles speclis diagnoised me, the doctors didn't know, which was really annoying.
I'm now trying ibeprofen (excuse my horrible spelling)
We have to wait and see if this works
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Old 07-29-2009   #15
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Ouch. See Sophie, most of us are on high pain killers which can be VERY bad considering they are bad for you and they make us build a tolerance and soon we will have nothing to really work for us.

ANYWAYS- but as long as ibeprofen works for you...so be it!

Hope all goes well.
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Old 07-30-2009   #16
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Its not working though :/
But mum is still making me keep on them. Pointless if you ask me.
I have tried a lot of stuff, but none of it seems to work :/
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Old 08-08-2009   #17
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oh man. im on like 7 different kinds of meds, that i still dont know the names of by heart. i had oxycodone, i remember that one.
i used to take vicodin but it made me sick... it might have just been a wrong dosage?
i take tramadol after surgeries, and if my pain gets super bad one day.
i take 1200 mg of ibuprofen every day... as well as vitamin c. melatonin or something like that? and two migraine medicines b/c i get chronic migrains all the time from eds.
tramadol works wonders for me, but its not a good day to day medicine, it can make you kind of loopy sometimes =P
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Old 08-13-2009   #18
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i was prescribed naprosyn 500 mg from my "family doctor" (i don't know whether this kind of doctor exists out of Italy)
(naprosyn = naproxene)
it is for rheumatic pain.
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Old 08-22-2009   #19
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Dilaudid 4mg works for me as well as 7.5/700mg of Vicodin
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Old 08-24-2009   #20
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Chiara we have 'family doctors' here in England too

paracetemol does nothing for me, i take para and codiene for mild pain and ive been prescribed codiene phosphate for really bad days which helps
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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