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~Suggestions for the EDSkids website~ Have a suggestion for the site??? Want to see a new forum topic started??? Let us know here!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-11-2008   #1
ReineDeLaSeine14
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"in the news" forum
Would anyone be interested in a "news" forum in which we can post news stories or videos relating to EDS or Dysaut? I've been finding more and more of them on the Internet I'd like to share.
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Old 01-11-2008   #2
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Quote:
Originally Posted by ReineDeLaSeine14 View Post
Would anyone be interested in a "news" forum in which we can post news stories or videos relating to EDS or Dysaut? I've been finding more and more of them on the Internet I'd like to share.
Added!
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Gwendolyn
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EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
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Old 01-11-2008   #3
ReineDeLaSeine14
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thanks
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Old 01-11-2008   #4
xxBrittany
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That was a great idea for the EDSkids website and cannot wait to see what people find! Good thinking.
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Old 01-11-2008   #5
ReineDeLaSeine14
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yeah i've been seeing more and more articles on it...
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Old 01-11-2008   #6
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Ha. I could post a lot of articles on it too!
Wait till I have the patience to type up what Union Memorial Hospital is doing in Baltimore that ticks me off to no end. You'll be very surprised yet shocked at the same time..
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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