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~Doctors Appointments~ Feel free to share appointment updates in this section.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-21-2008   #1
SunsetParadise19
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Neurologist
My neurologist is scheduling me for an updated brain MRI and is also adding my spine and neck into the MRI. When he was checking my reflexes, he felt my knee reflexes were too strong on both legs. I also couldn't feel a freezing cold object on both of my feet but could feel it as the object progressed up my legs. I asked about Chiari Malformation and he said that he would make sure to look for that on the MRI.

My headaches that I get frequently he is calling vascular headaches...a mix combo of migraines and tension headaches. We're going to give Elavil a try again since I've been off it for over a year....hopefully as he said my body has had a long enough break from it and Elavil will help prevent them.

Regarding my insomnia, we're going to give the Elavil two weeks on 10mg's and if I don't have any improvement I can take two a night....if that doesn't work, I will see a sleep specialist and see what they have to say.
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Old 01-22-2008   #2
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Hope all goes well. For you.
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Old 01-24-2008   #3
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Dittoooooo!
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Old 01-25-2008   #4
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Ditto after Steph. :P
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Old 02-09-2008   #5
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I hope it all goes well for you and the Elavil works for you. I was on that a few years ago and it knocked me out, but in the morning I felt sick like I had a hangover and none of the fun times that usually come from the night before. Plus it was EVERYDAY! It was killer. I hope it helps with your Migraines though. They are so tiring.
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Old 04-13-2008   #6
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I hate INSOMNIA.
I just want to constantly bang my head on my bedroom wall and then maybe i'll get some sleep for a little bit. haha.
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Brittany Lynn
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Old 04-16-2008   #7
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Ditto...i told my psych to get me a good frying pan...
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Old 04-16-2008   #8
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i was just talking to my PT about insomnia and cause standing is my most comfortable position he said I should get a coffin and just tilt it against the wall so I can sleep standing up
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Staci Jo
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 When the world says "Give Up"; Hope whispers "Try one More TIme."

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Old 06-25-2008   #9
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Quote:
Originally Posted by stacekins View Post
i was just talking to my PT about insomnia and cause standing is my most comfortable position he said I should get a coffin and just tilt it against the wall so I can sleep standing up

Haha. Staci the Vampire. Has a nice ring to it, eh!?
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Brittany Lynn
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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