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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 06-24-2010   #21
SophieeBabessxo
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I just can't do maths all together! Yet somehow, all the exams so far have been a B lol.
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Old 06-25-2010   #22
Beth...x
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I have a scribe in my exams because some days I cant even hold a pen without getting severe cramps and i use a laptop for taking notes but in physics because its all maths I have a scribe for that aswell because it would be impossible to take notes on a laptop.

I also get really bad back ache so get breaks in my exams whenever i need them and i get a comfier chair than other people
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Old 06-30-2010   #23
xxBrittany
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Beth! I wish I could get all of those awesome accommodation here, but here in Maryland, I've had a tough time fighting with the disability people..

Glad those accommodations are helping you though!
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Old 07-01-2010   #24
Beth...x
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Its taken me 5 years to get all my support so the fighting pays off
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Old 07-21-2010   #25
alphonsebelly
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Mogigraphia are all tasks that I did, I can break.Writers should be higher end, their biggest problem as the theorem of secular writers block The book does not go so well seems to have fallen mentally mogigraphia.
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Old 10-20-2010   #26
xxBrittany
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Well, I do have really bad back problems.. and now.. just found out I more than likely have scoliosis and never knew about it my whole life. WONDERFUL!
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Old 10-22-2010   #27
ReineDeLaSeine14
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my dr told me i have scoliosis but it's not true...my spine is straight...my shoulders and hips aren't so it looks like i have it but i really don't
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Old 12-27-2010   #28
xxBrittany
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Well my back is REALLY bad, and I even had two opinions and my mom's brother who passed away years ago also had it!
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Old 12-30-2010   #29
TinyBrooke
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My sister has scoliosis. In addition to a side-to-side curve, when images of her back were taken from the side, you can see that the 3 curves in her back (everyone has those three curves that run front to back) aren't as curved as they should be. They look more like zigzags that curves, and according to her doc, they add a fair amount of pain.
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Old 01-05-2011   #30
xxBrittany
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Ouch. I don't think I have the zig-zaggyness but I definitely have the over curved spine!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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