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Reload this Page Mogigraphia?

~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 11-09-2009   #11
xxBrittany
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So I was just reading all of you all's posts, and I just am wondering if I have Mogigraphia.. I say this because, when writing papers for college, I have to stop like every 3 minutes or so and grab my hand and hold back tears because my thumb and other muscles in my hand hurt..

Should I look into this?
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Old 11-11-2009   #12
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Yeahh. cause i get the same. Cause if you do have it, you can get extra time on your exams.
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Old 12-21-2009   #13
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Found out today, I get 20% extra time and a break in the middle if needed. Just shows if you keep enquiring about something, you will get an answer as we have been trying to get this for 2 years now.
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Old 01-12-2010   #14
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I sent in a whole bunch of paper work into my disability worker for my school, and they are allowing me more time and such. That will be A GREAT HELP! I'm also getting a thumb brace and I am hoping it won't hurt !
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Old 01-12-2010   #15
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Awwh awesome
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Old 01-12-2010   #16
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Yeah, I was pretty stoked about it. Whenever I write my hands cramp up so bad and almost literally bring tears to my eyes. But hopefully, that will get better with the braces and what nots!
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Old 01-13-2010   #17
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Yeahh hopefully
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Old 06-18-2010   #18
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So how has the extra time and what nots been helping you?
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Old 06-20-2010   #19
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Well, for my RS (Religious Studies) exam, I had to do an hours worth of writing, with the extra time, that came to about 1:15 hours. That helped sooo much!! It also helped with my Health and Social Care exam, as that was the same amount of time. I don't think I would of been able to finosh the exams without the extra time
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Old 06-20-2010   #20
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Yeah! I bet. That is A LOT of writing!

Most of my college professors allow me to have my laptop in class to take notes on. That makes things a lot of easier.

But it's hard when I have math, especially a lot of it, because you don't do that on the computer, because it's really hard and time consuming to do that. Ugh. If only they made an easier way to do math for people like us!
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"some of us are just trying to get through the day without falling apart."


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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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