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~Suggestions for the EDSkids website~ Have a suggestion for the site??? Want to see a new forum topic started??? Let us know here!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 04-22-2009   #1
Doctor Ken
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Just want to thank you

"just want to say that I have been through the website and would like to say EXCELLENT. Great information, advise and down to earth straight to the point info without charging a penny!"
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Old 04-22-2009   #2
xxBrittany
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Thanks Doctor Ken, but I have to ask you to please remove your links in your signature. We do not allow advertising on this website.

Thanks!

--The Administration Team.
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Old 04-26-2009   #3
ReineDeLaSeine14
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I have sent you an infraction as the ad has not been removed
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Old 04-27-2009   #4
Doctor Ken
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don't you think that i am a quality contributer to the forum so i request i may be allowed to have a link in the signature.
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Old 04-27-2009   #5
Timeless
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it still constitutes as advertising, the quality of posts is not the issue.

in all honesty its a known advertising method where users are paid to participate (most of which are from India) and add links to their signatures, l have taken the liberty to remove your signature, this site is free to use and regardless of the reason of the inserted text you had in your signature it goes against our rules, this is a non-profit organization and as such no matter how remote the possibility that your signature was added for personal gain it had to be removed even if you were not profiting from it others may which is not the point of the site which is for friends to come together who share the same experiences and as an informational resource and support for users with EDS.
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Old 04-30-2009   #6
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Yes and most of our users are under the age of 18
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Old 05-04-2009   #7
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Ken, I am so very sorry for the inconveinence but we have young users on here that we try to keep safe as well as ourselves and do not let the mods or anyone else have signatures unless OKed and discussed with either Gwen or myself.

Again, I'm sorry but we have a 0 tolerance policy here on EDSkids and I hope that you understand.

-The Administration Team.
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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