~School Disscussion~Come here to find support, advice, or share stories relating to going to school (all levels of education) and your EDS!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I had double books, a key lock instead of a combo one, large print stuff, computer use etc etc
In public school they weren't really enforced except the book one because I was also supposed to be allowed to use calculators and have someone take notes for me.
High school was harder because I went to private and they aren't required to do 504s but for the most part I'd eventually get what I needed.
College is soooo much better though!
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What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
I had all the same accommodations that most of you all had as well.
My principal of High School and Dean of College however, were the most supportive and helpful of helping me achieve these accommodations due to my EDS!
I highly recommend that you all get accommodations even if you don't think you'll need them, because you never know when something can come up, and it may take days for them to help you. So getting the service early might be beneficial in its own ways.
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
I've had 504s at school ever since I can remember because of my hearing loss. Up until recently, it's only been to make sure I get a good seat in class so I can see and hear well. This year, though, I received:
-a pass that gets me out of class up to 5 minutes early so I can get to my locker and my next class on time
-an elevator key
-and for most teachers, I'm allowed to type most assignments rather than write them all out.
It helps soooo much and I'm thinking about talking to my mom about maybe having a wheelchair in the nurse's office in case I need it on a bad day.
So yeah. I have lots of experience with 504s, and my teachers were willing to make these accommodations even without it.
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EDS Hypermobility type
Raynaud's
Neurocardiogenic Syncope
Mitral Regurgitation
Hugs and lots of spoons!
That's awesome...I've had some teachers who were great and others that didn't believe I should have accommodations...it really was individual. At my Catholic high school some teachers gave me them and others didn't...they weren't required to by law b/c it was a religious school.
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
I have had the same problem waiting for my diagnosis of EDS with my previous diagnosis of HMS and tendinitis, eventually after my diagnosis I got everything sorted pretty quickly in all fairness to the school. I have one brilliant teacher who went away herself to try and understand what I was going through. She is now looking into some kind of support system for me and how she can help me through this which is amazing- wish all teachers were like her in all honesty!