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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 06-09-2008   #1
Chiara
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(: hi!
good morning everybody!
My name's Chiara, I'm from Italy and I'm 16.
and.....ok I don't know what to write anymore XD
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Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 06-09-2008   #2
stacekins
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Hi and welcome!
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Staci Jo
*21*

 When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

I'm a moderator here and if you wanna chat or have any questions I'm here.
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Old 06-09-2008   #3
Katherine
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Hey! *waves*
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- Katherine

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Vascular EDS
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Old 06-09-2008   #4
ReineDeLaSeine14
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Welcome!!! I went to Italy in 2004...it's gorgeous!
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I'm one of the mods here...feel free to PM me anytime (or IM too)
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Old 06-25-2008   #5
xxBrittany
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Hello!
I'm Brittany, one of the administrators & co owner of EDSkids.

Thanks for joining our little family! Glad you decided to join us!
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 06-25-2008   #6
xxBrittany
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ps- if you ever need anything please don't hesitate to ask.
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 07-07-2008   #7
SunsetParadise19
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Hey! Welcome to EDSkids!
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 07-15-2008   #8
Chiara
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Thank you all ^.^
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Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 08-05-2008   #9
xxBrittany
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No problem.

So Chiara, why dont you tell us a little about yourself..

Like hobbies, special activities, favorite colors, favorite music, etc?

You don't have to but you said you didn't know what to write so I am just helping by giving you suggestions.
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 08-13-2008   #10
Chiara
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suggestions are welcome!! Thanks!
I'm sorry for my late answer, but I was on holiday with my sweetheart, anyway...well...I don't have many hobbies, as when I'm not on holiday (from about 15 of June to about 15 of September) i usually get up, go to school, get home, have lunch, do homework and study, carry out my dog for a walk, then get back home, continue homework, finish homework, have dinner and watch some tv or read some pages of a book and then go to bed.
What a wonderful day! XD
If I have less homework to do, I see my boyfriend, my friends or I go out with my Mum...
Special activities...well...I am a clown! one of those who go to hospitals (and other structers, for example for disabilities and for old people) and try to make patients more happy! That's why when i found out i have EDS I didn't suffer very much, as I've seen lot of suffer in the people...
my fav colours are Purple and Orange, expecially when they're together ^^
after colors we get to music...
I listen to every kind of music apart from Disco, House andTechno and most of the Pop music.
These days I'm listening to "Eva" by Nightwish and some songs by Sonata Arctica...
One of my friends gave them to me
I'm sorry if I made some errors writing in english, but, you know, I'm italian ;)
Anyway, my diagnosis of EDS was made last March, but EDS doesn't affect my life so much so far, apart from sports and PE at school, and, of course, pain.
Read from you soon XD
Chiara
P.S.: Thanks for suggestions!!
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Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
Last edited by Chiara; 08-26-2008 at 05:40 AM.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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