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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 03-08-2010   #1
dev.x
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heart heyy
hey
my names Devon and I'm a 16 year old girl and I'm the last year of school

i joined a few months ago but never new what to put!!! lol so Ive only just thought about doing it,

i have EDS III which i am going through the worst its ever been
I'm currently on crutches and i have been on them for 6 months not long in some cases but very long if people just think you've broke your leg lol

I'm on crutches and an air cast because i have seriously flat feet which i have worn daffo's for since i was little but its deteriorated very fast as the tendon's tighten up so much its making my bones bash together * Ouch* this is happening on both feet which makes it very painful getting around :/

waiting for more surgery atm...hhmmm

apart from that all my joints hurt and pop out. great lol

knees...Back (so i couldn't walk at all)... hips constantly... ect ect

tbh its not really effected me until Ive got older and i used to enjoy doing lots of things like Windsurfing and dancing

i don't wanna sound like I'm going on so that me for the moment



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Old 03-12-2010   #2
ReineDeLaSeine14
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Welcome Dev!!!!

More surgery...this is for your feet?
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Old 03-24-2010   #3
dev.x
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yep :/ its got that bad its the only thing that they can do.i just read what i put and it sound really depressing!
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Old 03-25-2010   #4
SunsetParadise19
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Welcome!!!!!
If you ever need anything, don't hesitate to ask!
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EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
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Old 03-26-2010   #5
Johnna
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Welcome to EDS Kids! Sounds like you've got a lot going on. I also have type III so I know some of your grievances. I hope you find everything you need here.

<3 Johnna
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Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
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Old 04-21-2010   #6
Chiara
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Hi!! Chiara's back! After so long time..
Had so much to study and also....TO LIVE <3
Anyway welcome Dev my name is Chiara and i am italian (unfortunately...). I have EDS type III (my new doctor will have me tested for type I, actually) and I am 18
Nice to "meet" you
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EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 04-22-2010   #7
Katherine
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Hey Dev and welcome back Chiara!
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Old 04-24-2010   #8
xxBrittany
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Welcome Dev.
Sorry this is such a late introduction, but my name is Brittany and I am the administrator here at EDSkids. If you ever need anything feel free to Private Message me or send me an email at EDSkids_Forum@yahoo.com.

Thanks, and again.. WELCOME!

PS- Moderators are always here to help with issues as well, so don't hesitate to ask one of them either!!!
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Old 04-25-2010   #9
SophieeBabessxo
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Oo I haven't said Hi yet. Mannnn I feel bad now
I'll do it now

Hiiiiiiiii
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance
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Old 04-27-2010   #10
Beth...x
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Hiya, im a 16 year old girl with EDS III too
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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