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~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 02-10-2009   #1
Katherine
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hey hey
hey guys sorry for not being on here in a while things have been going on and just havent had time!

i dont know if you know, but over here in the UK weve had alot of snow fun to begin with but now rather annoying! im talking no one being able to get out of the street in their cars, no buses or trains or flights! ive had a few snow days which was fun and i havent injured myself...yet! its starting to melt now and is slippy and slushy out :/ not good! im all up for a bit of snow and a few days off, building snowmen, snowball fights etc but im over it now! lol

the coldness has been playing havoc with my chest pain these last few days, havent had them like this for years but theyve settled down now hopefully

anyways hope you guys are all dandy

xo
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Old 02-12-2009   #2
ReineDeLaSeine14
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it's been nuts here too Katherine...we had a ton of snow and now it's like springtime outside!

hope your chest feels better soon!
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Old 02-27-2009   #3
xxBrittany
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Weather has been ungodly crazy too!
It's either raining one minute, 70 degrees the next, snowing the next..raining again..INCREDIBLY windy that it blew all the shingles off of my darn roop, etc.

Sheesh. It doesn't help with my EDS at all.

PLUS, I have a question. Whenever it's windy does anyone's bones ever hurt?
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Old 03-01-2009   #4
stacekins
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my bones hurt when its windy, but usually here wind indicates a change in the type of weather we are having in Michigan, so it might just be the weather change.
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Old 03-02-2009   #5
Katherine
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no i cant say ive noticed a change when its windy, altho it makes it feel colder so one of my fingers hurts but thats because i cracked the bone in a car door a while back and my rheumo said it might be like that forever because i damaged the nerves and stuff
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Old 03-02-2009   #6
xxBrittany
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For some reason, whenever it's windy my bones hurt ALL THE TIME. Ugh. With all this snow and the drifting I have just been staying inside with my heating pad, curled up in my goose down blanket and what nots. Just trying to feel better.
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Old 07-27-2009   #7
SophieeBabessxo
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wind hurts my bones and joints, my mum wraps me with as much stuff as she can find
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Old 07-29-2009   #8
xxBrittany
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Awh, that's good your mom is caring and trys to help you anyway that she can!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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