~Announcements~Here you will find announcements related to this forum. Forum Rules and Regulations will also be posted here, which we ask all new members to read before posting. :)
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I'd like to apologize for not being here lately. I feel like total and utter crap because I feel like I am letting all of you down and stressing Gwen out for not being here.
These past few weeks have been nothing but total chaos.
A week and a half ago I had another surgery on my right shoulder to try to tighten it as much as total possible, which limits my mobility but it does not stop me from using my arm thank God. It's been rather tough dealing with the pain, but with no pain, where do you get in life right?! Anyways, also, I was in a pageant for the fire department I belong in competing for Miss New Windsor Fire Prevention and the incredible thing about that is I WON! My responsibility for being Miss New Windsor is educating people on fire prevention, safety procedures, and first aid presentations. I get to go to, banquets, meetings, parades, and other places to talk to groups of people. So that is another thing I have been busy with and I finished my schooling for the year about 3 and a half weeks ago. I got straight A's and am still in the National Honors Society for High School Scholars thank God and I am very proud of myself for accomplishing that.
But, however, I have a responsibility here on EDSkids that I have not been fulfilling, and again I apologize to each and everyone of you for that. Gwen and I made the commitment of making this site, and running it, and I have however not been holding up on my word of that.
So, from now on, I am going to try to be poking my head in here and there daily.
And, if I am not here daily, someone can email me if they have a problem or just want to check in.
My email is : brittany.roop@gmail.com
Oh! And I also forgot to mention that I am working at a Steakhouse called Lonestar. So that has been pretty crazy too!
Hope to hear from you all soon!
And I hope you all forgive mefor not being here, once again.
Take care & I hope all of you are doing well!
Gentle Hugs & A Wave Hello!
-Brittany
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
Brittany, I've been slacking too...on all of my forums. I have been doing better and not better......huge disappointment to feel good one day then horrible the next! Anyway, I'm going to try to get back in the swing of things!
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
You need to call me girl!!!!!!!! We haven't talked in AGES!
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller