EDSkids Forum
Register FAQ Members List Social Groups Calendar Search Today's Posts Mark Forums Read

Go Back   EDSkids Forum > EDSkids > ~Welcome New Members!~
Reload this Page Hey

~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

Reply
Page 2 of 3 < 1 2 3 >
 
Thread Tools
Old 04-20-2009   #11
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 903
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
But why are they called Spikas? It just makes it sound so painful.
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 12-15-2009   #12
Mcsuperawesome
Registered Users
 
Mcsuperawesome's Avatar
 
Join Date: Nov 2008
Location: Lodi, Wisconsin
Posts: 32
Send a message via AIM to Mcsuperawesome




This is the exact brace I have.
Exact.
It's bulky.
It's hard to walk in, but it doesn't allow me to move my leg in such a way that would dislocate it. It limits my movemnt, but hey, it keeps my worst joint in place. My left hip is the WORST ever.
__________________
-Shannon Katherine


EDS Classical/Hypermobility
CFS
Depression. PTSD
Mcsuperawesome is offline   Reply With Quote
Old 01-12-2010   #13
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 903
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Ouch. That thing looks painful, but HEY, if it helps it's all worth it!
Glad it is working for you Shannon!
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 01-15-2010   #14
dev.x
Registered Users
 
dev.x's Avatar
 
Join Date: Nov 2009
Country: dev.x's Flag is: UK
Location: UK
Posts: 16
hey
im new too and i also used to do alot of dancing..ballet..tap..modern..and flex, i was her favourate in flex cos i can do anything lol can do that now tho :/ can walk without crutches and having operation on monday!!
__________________
Devon♥
dev.x is offline   Reply With Quote
Old 01-29-2010   #15
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
I've never seen that brace before! I'm very small so a lot of braces can't be used on me.
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 02-09-2010   #16
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 903
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Stephanie, that sounds like such a hard problem to deal with. So do you have to get braces specially made when you need them?

Hello Dev, you're a dancer too!? It must run in a lot of EDSer's cause of flexibility I guess?!
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 02-09-2010   #17
SophieeBabessxo
Moderator
 
SophieeBabessxo's Avatar
 
Join Date: Jul 2009
Country: SophieeBabessxo's Flag is: England
Location: England UK
Posts: 379
Send a message via MSN to SophieeBabessxo Send a message via Skype™ to SophieeBabessxo
I do a bit of dancing too
__________________
Sophiee

Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance
SophieeBabessxo is offline   Reply With Quote
Old 03-12-2010   #18
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
For me...they don't even bother making them lol

I have custom thumb ones and have the order forms for SRS but it's mostly tweaking.
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 06-14-2010   #19
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 903
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Ah that stinks!

I do not have any fancy braces like those that you all have!

Where do I find them? At a pharmacy or do I get them from the doctor, because I think it's getting to the time where I might need to invest in some...
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 09-11-2010   #20
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
Britt your best bet is to have them prescribed to you by a doctor so you get the most supportive and the most proper ones. All mine except for my typical wrist splints were prescribed to me. I have an Rx wrist one too for injuries.
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Reply
Page 2 of 3 < 1 2 3 >

Tags
hey

« Previous Thread | Next Thread »

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -5. The time now is 03:48 AM.

Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Forum SEO by Zoints
© EDS Kids 2008
EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
vBulletin Skin by Fife Web Solutions for Free vBulletin Templates

Contact Us - EDSkids Home - Archive - Top