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~Venting / Having a bad day?~ Do you need to vent or are you just having a bad day? If so, this is the place to post!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 07-28-2009   #1
SophieeBabessxo
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mad Grrrrrrr >:(

I really hate my back, with a passion. I hate my knees aswell, hate my shoulders, hate my ankles, my feet, my wrist, my elbows and everything else.
It is such a stupid pain in the bum. My back permantly hurts, so does like everything else, but my back is by far the worst. Grrrrrrrrrr
My wrist literally just dislocated >
+ in town today, i can't carry half my bags, I have to get someone else to carry them for me, which makes me feel total disabled to do something.



Ok I'm done now.
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Old 07-28-2009   #2
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i really need that, better now, even though my knee is now about to do something :S
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Old 08-22-2009   #3
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I know how you feel. I really don't like the way my body looks. Especially since I gained a lot of weight due to meds.

Argh!!!!!!!!
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Old 08-23-2009   #4
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I've had to wait 3 weeks for a doc appointment on my back, going on tuesday, finally
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Old 08-24-2009   #5
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ive gone the otherway and lost like 5lbs so i went to the doctors and he told me to eat a mars bar! i nearly walked out! so now i have to go and see a dietician. tut
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Old 08-24-2009   #6
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Quote:
Originally Posted by SophieeBabessxo View Post
I've had to wait 3 weeks for a doc appointment on my back, going on tuesday, finally
just think you're lucky.
I have been waiting 8 months for a medical appointment :P
italian health public system is crap, even if it is public and that is one lucky thing, i know.
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Old 11-09-2009   #7
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I know exactly how you all feel. Right now I am in the same boat. I feel like a 8000 lb elephant is laying on my body, and I am so weak just moving at all kills me.
UGH. and that makes it extremely hard especially when you have college to attend and to take care of your boyfriend practically fiancee;!
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Old 12-30-2009   #8
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I've been soo bad over christmas I had to be sat down throughout most of it, really sucked
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Old 01-29-2010   #9
ReineDeLaSeine14
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I'm having a lot of problems too and my dr can't really do anything about it
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Old 06-19-2010   #10
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I really think doctors need to learn more about EDS and how to help us in med school. That's my personal opinion though.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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