~Venting / Having a bad day?~Do you need to vent or are you just having a bad day? If so, this is the place to post!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I really hate my back, with a passion. I hate my knees aswell, hate my shoulders, hate my ankles, my feet, my wrist, my elbows and everything else.
It is such a stupid pain in the bum. My back permantly hurts, so does like everything else, but my back is by far the worst. Grrrrrrrrrr
My wrist literally just dislocated >
+ in town today, i can't carry half my bags, I have to get someone else to carry them for me, which makes me feel total disabled to do something.
I know how you feel. I really don't like the way my body looks. Especially since I gained a lot of weight due to meds.
Argh!!!!!!!!
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
ive gone the otherway and lost like 5lbs so i went to the doctors and he told me to eat a mars bar! i nearly walked out! so now i have to go and see a dietician. tut
I've had to wait 3 weeks for a doc appointment on my back, going on tuesday, finally
just think you're lucky.
I have been waiting 8 months for a medical appointment :P
italian health public system is crap, even if it is public and that is one lucky thing, i know.
__________________
Chiara, 18
EDS III type (or type I, they wonder about it)
Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.
I know exactly how you all feel. Right now I am in the same boat. I feel like a 8000 lb elephant is laying on my body, and I am so weak just moving at all kills me.
UGH. and that makes it extremely hard especially when you have college to attend and to take care of your boyfriend practically fiancee;!
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.