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~Venting / Having a bad day?~ Do you need to vent or are you just having a bad day? If so, this is the place to post!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-10-2009   #1
Johnna
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question GOOD Doctors?
Hey guys... first off lemme tell you about this week. I have the cold. It's not just ANY cold... it's an absolutely terrible one. I have never been this miserable from a cold. Any of you realize that when you already feel like crap 24/7, catching a cold like this is just a slap to the face?

However on the bright side, my 19th birthday is coming up and one of my brothers in the UK, Ste', got me a Wii and let me open it early!!! Can you believe it?! Unfortunately I really overworked myself with it and now I'm in a looooot of pain x.x But ZOMG I love it and my brother soooo much!

ANYWAY. My whole point of this post is because I realized that we always talk about what doctors have done wrong. Today I had an experience that made me think, maybe I should make a thread about the good doctors that are out there. I put it in the venting section so people can read it when having bad days

So I woke up this morning with Pink Eye. I went to the doctor's office, and met Dr. Brennan. He had noticed that vicodin was on my chart so of course he asked me why. So I tried to explain EDS to him and he looked really skeptical. He left the room to write out my script, and when he came back in he told me all about the eye ointment and stuff. After that he suddenly had a lot of curiosity about my EDS... started asking questions like which joints do what and if my skin is affected. Turns out that while he was writing the script he also took the time to do a little research on EDS. He also asked about my mom's EDS and asked if I know other people with it. I told him about EDS Kids and he told me that it was awesome and stuff like that. I know all that seems rather simple, but when you mostly see horrible doctors, it's such a breath of fresh air to meet one like that, y'know?

What about you guys? Any positive experiences that left an impact on you?

<3 Johnna
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Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
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Old 01-10-2009   #2
SunsetParadise19
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Yes, and my awesome doctor left in November! I'm lost without him and the doctors left in the office are either grouchy or too fast.
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I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
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 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
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Old 03-02-2009   #3
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Awh. If you two need anything I'm here.
Just remember.. you're not alone in this!
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Old 03-04-2009   #4
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I have an awesome team...if it weren't for my psychiatrist we would have never have found out that I have the progression I have because I'm missing a gene (either a new disorder or a new type of EDS)

My pain doc is my homeboy though. He knows where it's at. He wants one of my dolls.
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Old 04-22-2009   #5
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Good doctors do exist - they are however, RARE!
Like EDS. Bahahha. I just cracked myself up.
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Brittany Lynn
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 04-26-2009   #6
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*rolls eyes*
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Old 05-04-2009   #7
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:P
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I am a site administrator and if you ever need anything please feel free to contact me.

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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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