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~Hypermobility EDS~ For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 04-25-2010   #1
Mcsuperawesome
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(: Doctors
There is A GREAT doctor in Wisconsin.
His name is Dr. Rudin at the UW Hospital in Madison.

He's fantastic.


And.
There's a fantastic website
http://www.ehlersdanlosnetwork.org/


If you call Lyn Sanders she'll actually pick up the phone and talk to you about EDS, and where you can find doctors and EVERYTHING.
She was on Mystery Diagnosis.
You can watch that Episode here
http://www.ehlersdanlosnetwork.org/m...diagnosis.html

Phone: (262) 514-2851

Her phone number is on the website, so I hope it doesn't get taken out of this post.

She's amazing and really helpful.
And it's awesome that she lives rather close to me.
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Old 06-14-2010   #2
xxBrittany
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Awesome! Thanks for sharing this!
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Old 09-11-2010   #3
ReineDeLaSeine14
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How funny!

I'm CT's State Captain for EDSNC LOL. I had someone working with me but she moved to California
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Old 10-20-2010   #4
xxBrittany
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sorry the person working with you moved! that stinks!
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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