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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-11-2008   #1
SunsetParadise19
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Doctor appointment in few hours

I had to call and make an appointment. I can't stand these damn uti symptoms anymore! It also feels like my hearts racing which it had been doing SO much better! Last night I had a terrible terrible migraine...so guess it's good I'll be going.
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller

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Old 01-11-2008   #2
ReineDeLaSeine14
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Good luck! Have you been following up with your urologist? Hope you feel better soon

*Callout on the language there Gwen*
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Old 01-11-2008   #3
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Oh, at least there aren't kids here yet lol...and we said we could once in a while lol.
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller

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Old 01-11-2008   #4
ReineDeLaSeine14
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Rofl
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Old 01-11-2008   #5
Johnna
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This may sound strange, but have to been tested for mitral valve prolapse?
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Old 01-11-2008   #6
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I've had my fair share of ECHO's done and nothing has ever shown up. And if MVP would show up in EKG's, I would defiantly know by now lol...I've seriously had over 50.
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller

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Old 01-11-2008   #7
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goodluck at the doctors. I hope that they can do something for you.
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Staci Jo
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When the world says "Give Up"; Hope whispers "Try one More TIme."

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Old 01-11-2008   #8
Katherine
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good luck with the docs
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Old 01-11-2008   #9
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I'm back . I do have a uti, though I can't get the antibiotic he prescribed .... because my stupid insurance won't pay for it twice in a month...so I'm waiting for a new one to be called in. Anyway, he wants me to see a rheumy because my FM is getting so bad and he increased the vicodin dosage until I can get into the rheumy.
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller

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Old 01-11-2008   #10
Katherine
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glad that they got you some meds, but big bummer that you have a UTI and your fibro is bad. I hope the meds will help you feel better.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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