~Hypermobility EDS~For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
Has anyone had any luck with braces? I've always been disappointed by them. The unstableness would just travel along to an unbraced joint. I would brace my ankles and then need to brace my knees, which would make my hips unstable and I would have to brace them as well. I found it to be not worth the trouble
dislocations happen every once in a while, but subluxations happen CONSTANTLY.
mainly in my knees... but also in my fingers/wrists, hips and ankles.
I have knee braces from past surgeries that i use occasionally... they help the dislocations a little bit but they mainly seem to ease the day to day aching in my knees especially while im walking. it makes me walk more normally instead of my weird turned in hip/knee limp walk which is much less painful in the long-run
I find that braces are not for me, but have helped my other friends.
It's almost hard to judge unless you have tried them to make sure they work for you or not.
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
I wear braces on my knees, ankles and wrists and need splints for my fingers. They are my godsend as I'm not allowed surgery and PT does not work for me at all.
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What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)