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~Doctors Appointments~ Feel free to share appointment updates in this section.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 06-30-2010   #21
xxBrittany
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Well considering I wouldn't even take a dying dog to the hospital near my home, I have no clue. Hahaha.

I am going to do some research on it though, and if I find anything out, I'll let y'all know.
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Old 09-11-2010   #22
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Britt you might want to try seeing a dietitcian. Since you live near Johns Hopkins Dr. F probably can help you.

I asked my mother's rheumatologist what to do. She said the best is small changes...like she started using whole milk for coffee instead of cream...then gradually...2%...then 1%...than skim to NOTHING. Same with sugar. She said she lost 5 lbs from that (and she's a short woman like me) in a year just from THAT.

And increasing your activity even a little is better than nothing. Dr. F also will help you find activities that won't hurt you.
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Old 10-20-2010   #23
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The thing is, I am quite addicted to Soda.. (BAD I KNOW!! ) and I do consume quite a bit of sugar so I have enough energy to get through the day!
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Old 10-22-2010   #24
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Yeah but the crashing's no fun...I did that last week LOL
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Old 01-05-2011   #25
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Oh no. Pleaseeeeeeeee don't tell me that. Hahaha.
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Old 01-05-2011   #26
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Sugar and caffeine get me through my day lol
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Old 06-13-2011   #27
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I have been doing REALLY good since I cut out most sugar's and ALL the soda's I was drinking on a daily basis. Plus I've been going to the gym more, and trying to eat healthy and I noticed it makes me not only feel better, but look a lot healthier too!
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Old 06-14-2011   #28
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That's really good news Brit
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Old 08-15-2011   #29
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Thanks Sophie! I think so too. I am still trying to take a healthy approach to things!
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Old 08-18-2011   #30
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I need to do that! With results day only a week away, I've been eating so much rubbish
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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