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~Doctors Appointments~ Feel free to share appointment updates in this section.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 11-16-2009   #11
Katherine
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i doubt it! you're still young! lol
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Old 11-17-2009   #12
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I still eat a lot
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Old 11-17-2009   #13
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no harm in that!
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Old 11-17-2009   #14
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Better hope soo :L
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Old 01-12-2010   #15
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Ohh. I eat sometimes when I am upset. BAD HABIT. And I have gained alot of weight not only from bad eating habits but from my medication and I am trying to lose some. Anyone got any tips on how to get some good weight loss?
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Old 01-13-2010   #16
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I went on a diet when I started year 9 (just over a year ago) but i lost too much from hardly eating anything :/
Aint going back there tbh.
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Old 01-14-2010   #17
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there has been a programme here in the UK about limiting your calories and it showed u what 100 calories is equal too..i was shocked! ive been told a couple of things to put weight on so maybe if you do the opposite...i got told to not move after ive eaten a meal, and eat before i go to bed plus the normal stuff like eating high calorie foods etc i've put on half a pound in the last week (yay!) BUT im back to square one because i lost 3 pounds over Christmas somehow :s but now its starting to go on i hope it stays on! onwards and upwards!
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Old 01-29-2010   #18
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I'm in treatment for an eating disorder and am pretty well recovered. I love eating Cliff and other nutrition bars...I used to have to drink Ensure and other supplement drinks but I don't need to anymore.

Being on prednisone all this time helped too lol. Have they considered an appetite stimulator?
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Old 06-18-2010   #19
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No, I don't know what to do.
I am currently 206 lbs, and I feel like a whale.

No matter how much I exercise I STILL cannot lose anything.

Ugh. My doctor won't help because he's a jerk.
Is there any programs for EDS patients to lose weight that you know of?
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Old 06-24-2010   #20
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No I havent heard anything about diets and EDS apart from eating foods which help strengthen bones etc

I've put on 2lbs in 3 months so I'm hoping thyat sticks around. I have to go back to the dietician in 6 months and then I'm hoping we can go our serperate ways.

I'm sorry your doctors a bit pants with the losing weight stuff, have you roamed the internet? do you have anything like a dietetics or nutrition department at hospital or anything that you could try?
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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