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~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 07-26-2008   #1
Chiara
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The blog of a EDS girl

hi everybody!
just come back from holiday and leaving again tomorrow morning!
and what's best I'm leavin with my boyfriend!
sorry bout that, i'm just very happy

Anyway what i wanted to tell is that i've found a blog of a EDS girl, i liked it so i decided t share it with you ^^
http://girldislocated.blogspot.com/
hope you like it, if you haven't ever read it
Chiara
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Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 07-29-2008   #2
SunsetParadise19
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Neat! Thanks for posting!!
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Gwendolyn
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EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller

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Old 08-05-2008   #3
xxBrittany
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Thanks for posting the blog!
I really appreciate it and find it VERY interesting to read!
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Old 08-07-2008   #4
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i had a good read, thanks!
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Old 08-22-2008   #5
ReineDeLaSeine14
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i love her work...she's so funny!
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Old 09-01-2008   #6
xxBrittany
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She IS hilarious! Ha. I feel like FINALLY someone who doesn't know me at all, knows exactly what I am going through.
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"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 09-16-2008   #7
ReineDeLaSeine14
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mhmm i was inspired and made my own!
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Old 10-20-2008   #8
xxBrittany
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Awh - same here Steph!
What is your link? Is it open for public to read?!
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A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 07-27-2009   #9
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Quote:
Originally Posted by ReineDeLaSeine14 View Post
mhmm i was inspired and made my own!
samee, i never had a reason to write a blog, but now im really inspied (:
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Old 07-29-2009   #10
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I try to write in my livejournal but I never have time. I barely have time to manage everything here on EDSkids.
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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