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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 07-27-2009   #1
KitteryTide
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Autism Spectrum Disorders
I was just wondering if there was anyone else with an ASD and if they knew if there was a link between the AS and EDS. I got the EDS from my dad's side and he also has Asperger's syndrome. I have an older brother with severe low functioning Autism and severe EDS. My older sister also has severe EDS and was recently diagnosed with Asperger's. I also have EDS and Asperger's. Out of nine children four have EDS and out of those four three have an ASD.

Your thoughts?
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Old 07-29-2009   #2
xxBrittany
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Hello! Glad to have you here!

And- really I don't know many people with EDS & Aspergers but I do know it's possible.

Hope that helped your question!
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Old 07-31-2009   #3
Chiara
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i heard of this association before, too.
Just i don't remember where actually...
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EDS III type (or type I, they wonder about it)

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Old 11-09-2009   #4
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Any luck finding an answer to your question KitteryTide?
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Old 01-29-2010   #5
ReineDeLaSeine14
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Hey there!

I have Asperger's myself...was diagnosed around age 20.

I have heard of a link but Dr. Francomano said that ASD is so common there will never really be a way to tell.

<3
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Old 06-18-2010   #6
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Hey Steph-
How do you like Dr. Francamono?
I am filling out paperwork to see her now, and hoping to get an appointment ASAP.
My geneticist is an jerk, and does not help my emotional stability AT ALL.

You think she would be better than what I have?
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Old 09-11-2010   #7
ReineDeLaSeine14
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YES YES YES.

I love her. I'm having so many problems I might have to go back though As much as I love Dr. F, it's usually bad stuff that lands me in her office...
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Old 10-20-2010   #8
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Aw. You are right though, she is a GREAT doctor.


She seems as if she really genuinely wants to help us!
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 08-18-2011   #9
SophieeBabessxo
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What are the symptoms (if that is the right word) for a low ASD?
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance
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Old 08-20-2011   #10
TinyBrooke
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I suspect I have an ASD as well.
Sophie-- here is a link that has a bunch of info about them: http://www.webmd.com/brain/autism/au...trum-disorders
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EDS Hypermobility type
Raynaud's
Neurocardiogenic Syncope
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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