~Announcements~Here you will find announcements related to this forum. Forum Rules and Regulations will also be posted here, which we ask all new members to read before posting. :)
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
Thanks for opening this, and thanks for being such great members of EDSkids.
Ok, so since I am an admin and co-founder of EDSkids, I have a office in my house dedicated soley to EDSkids.
I am updating my member records and need the following from all of you which you can send me in a PM or just post under here if you would like, but would probably be wise if you sent me a private message.
I need the following:
Home Address
Email Address ( s ) that you would like to receive email from EDSkids on.
Phone Number ( s ).
And any other contact information that you would like me to have.
The purpose of this is so I have the records, can send you things such as newslettesr, etc.
Please Note: ALL RECORDS WILL STRICTLY BE CONFIDENTIAL.
Please turn these in to me as soon as possible. Thanks!
Also, the very first EDSkids Newsletter will be upon your very own fingertips very soon! I need to know where you would like me to send them, email or snail mail OR both.
FOR PEOPLE OUT OF COUNTRY, IF POSSIBLE I'D LIKE TO SEND THE NEWSLETTER THROUGH EMAIL SINCE STAMPS ARE VERY EXPENSIVE TO SEND YOUR WAY AND DON'T HAVE A FULL TIME JOB AT THE MOMENT! THANKS! If this doesn't work for you, just let me know... it's fine!
So again, as soon as you all can get them to me, that would be great.
Thanks Everyone!
Have A Merry Christmas & Happy Holidays OR Have a Happy Holiday in whatever you are celebrating!
Also, please be careful when traveling or doing whatever you are doing to celebrate.
Thanks, if you have any questions please feel free to contact me by EDSkids email, Personal Email, Instant Messengers, Myspace/Facebook, PM, etc.
Thanks for being so cooperative.
Sincerely,
The Admin. Team
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
A note from your resident web guru and webmaster ^^
Posting your address on a publicly viewable website is never a good idea - it can lead to all sorts of problems especially since you have most likely also posted your age and gender too. It means a potential online stalker (yes they do really exist) hardly has to do any work to find out virtually everything about you. I must also point out from a legal standpoint that giving your name and address is 100% optional ;) There is no pressure to do so. Your name and address will also be erased permanantly from the records upon request.
~~Ai~~
Thanks for that addition Ai.
Members, you do not have to disclose any information to me/ EDSkids unless you would like to do so.
Not pressure intended.
Again, thanks Ai for that reminder!
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
Spring cleaning in my house has taken over my life, so I again, want to get everyones records as for some people have moved, gotten new email addresses and such.
Can everyone get this information to me ASAP too, EDSkids_forum@yahoo.com
Thanks!
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.