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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-16-2008   #1
ReineDeLaSeine14
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Amitiza
Well since the Miralax is no longer doing it's job (well) my gastro had another trick up her sleeve...

Amitiza is used for chronic idiopathic constipation...most people take it twice a day with a meal.

It's supposed to get the smooth muscle of the GI tract to contract to make stuff move on out lol...she said it works in about 2/3 of people who take it...pretty good odds.

However...nausea is the major drawback...she said it usually will go away in...two weeks!!!!!

Has anyone here ever taken it?
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Old 01-16-2008   #2
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Aw. Steph - I hope the nausea goes away.
I have never taken it but I do wish you all the luck with it and I hope it helps!
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Old 01-16-2008   #3
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I haven't started it yet. I told Mom the nausea will probably be like the kind I had in the summer when my POTS was really bad.

EEEEEEW.
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Old 01-16-2008   #4
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(((hugs)))) I've never tried that drug Steph but I hope it works for you!
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Gwendolyn
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EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
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Old 01-17-2008   #5
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I hope so too...I think it's the last one.
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Old 01-17-2008   #6
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Quote:
Originally Posted by ReineDeLaSeine14 View Post
I hope so too...I think it's the last one.
(((hugs))) and *crosses fingers*
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 01-24-2008   #7
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I'm starting it tomorrow...my gastro said I'll be pretty out of it this weekend and wants me to stay home and be near my bathroom and my bed.

She's also helping me find a dietitian as I don't gain weight
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Old 01-24-2008   #8
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Thinking of you Steph! (((hugs)))
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 01-25-2008   #9
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Aw. Steph, I hope this is the answer for you and if there is anything I can help with please let me know!
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Old 01-27-2008   #10
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Well it didn't work for two days loooool but I think it may be now but I want to ask my doc to give me another week to let me figure out if i really like it or not.

Thanks
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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