~Miscellaneous~Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
Lately... I've been very confused. I feel like I've become so used to pain that it's all become, well, relative. I can't decipher between mild and severe pain anymore... pain is just... pain. This isn't good... I don't know when to treat my symptoms anymore...
Am I going crazy...? Has anyone else experienced this...?
-Johnna
__________________ I'm an admin so please let me know if you need anything! =]
Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =] I'm a ninja, zomg!
l cant relate to the whole EDS thing but l can to the whole pain thing... its why l stopped cutting (yeah l went through a phase of of it which l wont go into detail about) altho in my perspective depending on how l feel l just dont feel anything at all..
I know I have a hard time deciphering the type of pain that I'm having. It all just kinda blends together and is pain. Its almost like I'm loosing the ability to feel at times.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.
sometimes happens to me too...
that's why a doc told me to take Tript-OH
__________________
Chiara, 18
EDS III type (or type I, they wonder about it)
Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.
I know exactly what you are going through Johnna.
Pain is something all of us EDS-ers have to experience.
Some is better than others and some are worse but about 2 months ago I was going through the exact same thing you are. Please hang in there, because, well... it got better for me. So hopefully it will get better for you!
You have my number so please give me a call, email me, IM me, whatever.. anytime of the day/night. I will be more than glad to talk to you. I don't care if your laughing,screaming, talking my ear off, crying,etc.
I'm always here for ya girl!
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.