a question

[Chiara]

The day before yesterday I have been in ER from 12.30 to 20.15.
I went there because I was in the shower when I had tachicardya and then started to feel like if something was pressing my thorax.
when I lay down it stops and when I get up it starts again.
has anybody of you experimented this before?
what did doctors said about that?
Chiara

[ReineDeLaSeine14]

Yep...I have Dysautonomia (Postural Orthostatic Tachycardia Syndrome)...it's very common with EDS.

[xxBrittany]

Ditto to what Steph, said!

[Johnna]

I had almost the exact same experience.

[Chiara]

They told me it was nothing...that I was simply nervous...

[ReineDeLaSeine14]

I've gotten that too...i think we all have :)

[Chiara]

but that happens just sometimes...

[xxBrittany]

Same for all of us on the most part. Or for me at least. It DOES only happen sometimes. It's a tricky thing to deal with. blargh..

[Chiara]

that happened no more....:hmmm

[xxBrittany]

So how are you feeling Chiara?

[Chiara]

quite good thank you :)
I've found an EDSgirl in my school, she's two years older than me!
of course i'm not happy she has it, but i'm happy i've found some one with EDS in my town :)

[xxBrittany]

That is awesome!
Glad you found someone that you can share your likenesses too!