Hi

[vim876]

I'm Cecilia, I'm 24, and I live on the east coast of the US (I'm not trying to keep people from figuring out where I live, I'm just constantly moving back and forth between the apartment where my bf and I live, and my parents' house, which is where my doctors are.) I hope I'm not too old to post here. If I am, sorry. I only found out about EDS' existence two weeks ago. I discovered it while doing internet research after being in the ER for a dislocated shoulder and resulting bone fracture and having an doctor say "Are you sure you're not being abused? Things like this don't just happen, you know." I figured there had to be something. When I saw the symptoms of EDS hypermobility type, it was like something finally explained all those things that happened to me over the years, and I'm so relieved it isn't just in my head. My doctor said it was probably EDS, admitted not knowing much about it besides the diagnostic criteria, and he's calling a rheumatologist he knows to see if they can recommend a specialist in connective tissue disorders. Fingers crossed. Peace.

[Chiara]

hi, nice to meet you! :)
glad you joined us :)

[Katherine]

Hey :)

[SophieeBabessxo]

Hiyaaa :D

[ReineDeLaSeine14]

Welcome!

[xxBrittany]

Hello!
My name is Brittany, and I am one of the administrators/co-founders here at EDSkids, and my business partner Gwen (Sunsetparadise19), is also the other administrator/co-founder here at EDSkids. So if you ever need anything, please don't hesitate to ask one or both of us!

Also, I am not sure where on the east coast you live, but here in Maryland in Baltimore I go to a doctor named, Dr. Howard Levy. He is a geneticist, and very blunt but thorough on the things he tells you.
Don't know if that helps you at all, or how far you are willing to travel, but if you would like a phone number or any other information, private message me!

Thanks for joining us! And hope you are having a good day! Hugs & Spoons!

[ReineDeLaSeine14]

I made a trek to Maryland myself from CT to see Dr. Clair Francomano who really changed the way I saw my care :)

Welcome again!

[SunsetParadise19]

Welcome!

[trevorlawrence]

Hi All,


Just wanted to Stop in to say hi and also to introduce myself here! The Boards look extremely interesting and I cant wait to become a member of the community!


The main reason to join here is to get some assistance on medication and depression problems which my loved ones are facing.


Thanks,
Trevor.

[ReineDeLaSeine14]

Welcome Trevor! Do any of your family members have EDS?

[xxBrittany]

Welcome Trevor, glad that you could join us.
As Stephanie asked, do your family members or friends have EDS?


My name is Brittany and I am an Administrator/ Co-Owner of EDSkids. If you ever need anything please don't hesitate to ask me, or a moderator.
Again, thanks for joining us here on EDSkids and hope to talk to you soon!